Earlier this summer I emailed the editorial staff of the show and told them about my story along with a link to my blog. I wrote about this in the post Let Us Create Media Attention - Why and How on the Curezone forum.
My goals for the interview (so far):
* to explain my symptoms and get the name exfoliative cheilitis heard
* bring attention to the lack of research
* call out to fellow sufferers, doctors and researchers that have/or want more experience with exfoliative cheilitis and want to help
Do you have any more ideas on how to make the most of this interview? Contact me!
Hi David,
ReplyDeleteHow did it go?
Peter
It went quite well, the show aired a couple of days ago. I'll write a post about it as soon I have the time.
ReplyDelete